Heart of Iowa Chapter of the National Marfan Foundation

The Heart of Iowa Chapter of the NMF carries out the mission of the National Marfan Foundation throughout Iowa. The group educates doctors, emergency department personnel, coaches, school nurses, athletic directors and the general public about Marfan syndrome so that everyone with this disorder receives the best care available.

As an example, we’ve been able to present the real life stories of people living with Marfan syndrome and the everyday struggles to first and second year medical students, as well as podiatry students, physical therapy students and physician assistant students. We have been able to bring kids together who have never seen another person with Marfan syndrome. These connections have brought comfort and life-saving knowledge to people that would not have received this otherwise. Kids get to meet other kids and finally feel “the same as everyone else” at the conferences.

This is our 10 year anniversary of the Have Heart for Marfan Walk Fun/Run. Our goal this year is to raise $10,000 ($5,000 on this page) – a $1,000 for each year that we have held this event. These funds will support research, scholarships for families to attend the National conference, Education and Awareness and Support. Please make your 100% tax deductible donation in whatever denomination you can to help save a life. Please click on the firstgiving logo to the left to donate!

	July 30, 2010--Moonlight Stroll	Click Here for Moonlight Stroll Brochure

		Click Here to Register at Active.com



		Brochures are in PDF format and require Adobe Acrobat Reader to view.




	July 31, 2010--Walk/Fun Run	Click Here for Walk/Fun Run Brochure

		Click Here to Register at Active.com


		Click on image below for route map


	Recipes from the Heart Cookbook	Click here to order
		This recipe book features nearly 700 mouth-watering recipes from around the world. Books cost $20 plus $2.50 S & H. All proceeds will go to the 2009 NMF Conference or the Iowa Conference Scholarship Fund.

Heart Happenings	Spring 2009 Newsletter
Heart Happenings	Winter 2009 Newsletter
Heart Happenings	Winter 2008 Newsletter
Heart Happenings	Summer 2007 Newsletter
Heart Happenings	Winter 2006 Newsletter	Pictures from past events
Heart Happenings	Fall 2006 Newsletter
Heart Happenings	Summer 2006 Newsletter

	May 16, 2009--Drink For a Cure
		Click here for Drink For a Cure information

		Click here for Donations

		Drink for a Cure Press Release

		Click here to order Drink for a Cure T-shirts


Des Moines University	Presentation to Osteopathic Students

Northwest Airlines World Traveler	Article on the KidCares program from NWA
Health Questionnaire	Research questionnaire about the musculoskeletal issues experienced by those with Marfan Syndrome

Fundraising

			The Heart of Iowa Chapter of the NMF carries out the mission of the National Marfan Foundation throughout Iowa. The group educates doctors, emergency department personnel, coaches, school nurses, athletic directors and the general public about Marfan syndrome so that *everyone* with this disorder receives the best care available. As an example, we’ve been able to present the real life stories of people living with Marfan syndrome and the everyday struggles to first and second year medical students, as well as podiatry students, physical therapy students and physician assistant students. We have been able to bring kids together who have never seen another person with Marfan syndrome. These connections have brought comfort and life-saving knowledge to people that would not have received this otherwise. Kids get to meet other kids and finally feel “the same as everyone else” at the conferences. This is our 10 year anniversary of the Have Heart for Marfan Walk Fun/Run. Our goal this year is to raise $10,000 ($5,000 on this page) – a $1,000 for each year that we have held this event. These funds will support research, scholarships for families to attend the National conference, Education and Awareness and Support. Please make your 100% tax deductible donation in whatever denomination you can to help save a life. Please click on the firstgiving logo to the left to donate!