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The Heart of Iowa Chapter of the NMF carries out the mission of the National Marfan Foundation throughout Iowa. The group educates doctors, emergency department personnel, coaches, school nurses, athletic directors and the general public about Marfan syndrome so that everyone with this disorder receives the best care available.

 As an example, we’ve been able to present the real life stories of people living with Marfan syndrome and the everyday struggles to first and second year medical students, as well as podiatry students, physical therapy students and physician assistant students. We have been able to bring kids together who have never seen another person with Marfan syndrome.   These connections have brought comfort and life-saving knowledge to people that would not have received this otherwise.  Kids get to meet other kids and finally feel “the same as everyone else” at the conferences.

This is our 10 year anniversary of the Have Heart for Marfan Walk Fun/Run. Our goal this year is to raise $10,000  ($5,000 on this page) – a $1,000 for each year that we have held this event. These funds will support research, scholarships for families to attend the National conference, Education and Awareness and  Support.  Please make your 100% tax deductible donation in whatever denomination you can to help save a life.  Please click on the firstgiving logo to the left to donate!

Click here for Drink For a Cure information