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| What Is Marfan
Syndrome?
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| Marfan syndrome is a genetic disorder that was first described by the French doctor Bernard J. A. Marfan in 1896. It affects many organ systems, including the eyes, skeleton, lungs, heart and blood vessels. (more) |
| Calendar of Events |
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July 17,
2009--Moonlight Stroll |
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Brochures are in PDF
format and require Adobe Acrobat Reader to view.
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July 18, 2009--Walk/Fun Run | ||||||||||||||||
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Click on image below for route map |
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Recipes from the Heart Cookbook |
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This recipe book features nearly 700 mouth-watering recipes from around the world. Books cost $20 plus $2.50 S & H. All proceeds will go to the 2009 NMF Conference or the Iowa Conference Scholarship Fund. |
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| Newsletters | newsletters
are in PDF format and require Adobe Acrobat Reader to view.
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| Heart Happenings | Spring 2009 Newsletter | |
| Heart Happenings | Winter 2009 Newsletter | |
| Heart Happenings | Winter 2008 Newsletter | |
| Heart Happenings | Summer 2007 Newsletter | |
| Heart Happenings | Winter 2006 Newsletter | Pictures from past events |
| Heart Happenings | Fall 2006 Newsletter | |
| Heart Happenings | Summer 2006 Newsletter | |
| Past Event Information |
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May 16, 2009--Drink For a Cure |
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| Des Moines University |
| Fourth Annual | Scott Kiefer Have a Heart for Marfan Walk/Fun Run |
| Articles |
| Woman's Day 2007 | Article featuring Haley Dostalik |
| Northwest Airlines World Traveler | Article on the KidCares program from NWA | |
| Health Questionnaire | Research questionnaire about the musculoskeletal issues experienced by those with Marfan Syndrome |
| Links |
| National Marfan Foundation | Official website for National Marfan Foundation |
| Marfan Life | Jeanette Navia's website about life with Marfan Syndrome |
| Contact Us |
| Teri Dean | President | (515) 263-1948 or (515) 371-5633 |
