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| What Is Marfan
Syndrome?
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| Marfan syndrome is a genetic disorder that was first described by the French doctor Bernard J. A. Marfan in 1896. It affects many organ systems, including the eyes, skeleton, lungs, heart and blood vessels. (more) |
| Calendar of Events |
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April 08 Medical Presentation |
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September 1, 2007 |
2007 Scott Kiefer Walk Fun Run | |
| March 30, 2007 |
From Molecules to Medicine: Harry C. Dietz, M.D. (focus is for medical professional) | |
October
7, 2006 |
Press release for Big Hearts, Deep Pockets comedy event | |
September
2, 2006 |
Registration for Scott Kiefer Walk/Fun Run | |
September
1, 2006 |
Presentation to medical students at Des Moines University | |
September
1, 2007 |
click above for registration information |
| Newsletters | newsletters
are in PDF format and require Adobe Acrobat Reader to view.  |
| Heart Happenings | Winter 2008 Newsletter |
| Heart Happenings | Summer 2007 Newsletter |
| Heart Happenings | Winter 2006 Newsletter | Pictures from past events |
| Heart Happenings | Fall 2006 Newsletter |
Heart Happenings |
Summer 2006 Newsletter |
| Past Event Information |
| Des Moines University |
| Fourth Anuual | Scott Kiefer Have a Heart for Marfan Walk/Fun Run |
| Big Heart Deep Pockets | A comedy benefit for Marfan Syndrome |
| Articles |
| Woman's Day 2007 | Article featuring Haley Distolik |
| Health Questionnaire | Research questionnaire about the musculoskeletal issues experienced by those with Marfan Syndrome |
| Links |
| National Marfan Foundation | Official web site for National Marfan Syndrome |
| Marfan Life | Jeanette Navia's website about life with Marfan Syndrome |
| Contact Us |
| Teri Dean | President | (515) 263-1948 or (515) 371-5633 |