What Is Marfan Syndrome?
   
Marfan syndrome is a genetic disorder that was first described by the French doctor Bernard J. A. Marfan in 1896. It affects many organ systems, including the eyes, skeleton, lungs, heart and blood vessels. (more)    
     
     
Calendar of Events    

April 08 Medical Presentation

 

    Click here for registration form
 
 September 1, 2007
    2007 Scott Kiefer Walk Fun Run
  March 30, 2007
    From Molecules to Medicine: Harry C. Dietz, M.D. (focus is for medical professional)
   October 7, 2006
    Press release for Big Hearts, Deep Pockets comedy event
September 2, 2006
    Registration for Scott Kiefer Walk/Fun Run
September 1, 2006
    Presentation to medical students at Des Moines University
 
 
September 1, 2007
   
click above for registration information
   
     
Newsletters
newsletters are in PDF format and require Adobe Acrobat Reader to view.
 

Heart Happenings Winter 2008 Newsletter  
Heart Happenings Summer 2007 Newsletter  
Heart Happenings Winter 2006 Newsletter Pictures from past events
Heart Happenings Fall 2006 Newsletter  
Heart Happenings
Summer 2006 Newsletter
   
Past Event Information    

Des Moines University
Presentation to Osteopathic Students
 
Fourth Anuual Scott Kiefer Have a Heart for Marfan Walk/Fun Run  
Big Heart Deep Pockets A comedy benefit for Marfan Syndrome  
     
     
Articles    

Woman's Day 2007 Article featuring Haley Distolik
Health Questionnaire Research questionnaire about the musculoskeletal issues experienced by those with Marfan Syndrome  
     
     
Links    

National Marfan Foundation Official web site for National Marfan Syndrome  
Marfan Life Jeanette Navia's website about life with Marfan Syndrome  
     
     
Contact Us    

Teri Dean President (515) 263-1948 or (515) 371-5633